Eye Believe Patient Survivorship Seminar
Redondo Beach CA Sept. 5-8, 2019
Meet Our Speakers & Session Leaders

Dug McGuirk is an accomplished entrepreneur, musician, producer and inspirational speaker. Having run his own production company for 10 years, contributing sales of over 150 million records and multiple Grammy’s, a partner in an international hardware and software computer company, toured the United States as musician and a Senior Peak Performance Strategist / National Trainer/speaker for Tony Robbins, co-authored Multiple Streams of Inspiration with Jack Canfield (author of Chicken Soup for the Soul),Under Construction – Navigating the Detours on the Road to Recovery and a Master Practitioner and Trainer of NLP (neuro linguistic programming) and board certified in Neo Ericsonian Hypnosis.  Dug is well versed in true life experiences and overcoming personal obstacles to achieve success. He has also overcome a serious drug and alcohol problem early in life.  As Co Founder of Revolutionary Growth, Dug and his wife Heidi are committed to supporting the Transformation of Lives. His greatest passion is to help human beings achieve their full potential and dreams. To support positive paradigm shifts in human consciousness. His training and experience have given him keen insights and skills to support his clients to “Feed their Passion, and Starve their Fear” by allowing them to discover the miracle they always already are! His passion and enthusiasm is only exceeded by his genuine care and desire to honor your Journey…


Prithvi Mruthyunjaya, MD, MHS is an Associate Professor of Ophthalmology and Director of the Ocular Oncology Service at the Byers Eye Institute at Stanford Univeristy.  He is a vitreoretinal surgeon who has focused his clinical and academic career to the care of patients with eye cancer.

He grew up in Upstate New York and completed his ophthalmology training at the Duke Eye Center in Durham, North Carolina.  After completing a 2 year fellowship in vitreo-retinal surgery, he travelled to London to complete an ocular oncology fellowship at the Moorfields Eye Hospital.  He returned to Duke University where he served on faculty for 15 years building a comprehensive eye cancer service.

He has published extensively in the field of ocular oncology, ophthalmic imaging, and complex retinal surgery.  In addition he holds leadership positions in the American Academy of Ophthalmology, the Retina Society, and the Intenational

Society of Ocular Oncology.  His passion includes teaching the next generation of students, residents and fellows and currently serves as the retinal surgery fellowship director at Stanford.  He helped found the Ocular Oncology Study Consortium and serves on the executive committee for the Collaborative Ocular Oncology Group.


Omid Hamid MD is the Chief of Translational Research and Immuno-Oncology at The Angeles Clinic and Research Institute. He also serves as the Director of the Melanoma and Phase I Programs. His areas of expertise include immunotherapy and phase I drug development.

Dr. Hamid has published extensively and has been at the forefront of the development of paradigm shifting breakthroughs including BRAF/MEK targeted agents, AntiCTLA4, antiPD1 and PDL1 therapies. His current interests include new immunotherapeutic options for patients including bi-specific antibodies, Adoptive T-cell Therapy, and oncolytic therapies with a focus on combinatorial approaches resulting in potentially greater patient benefit. Through his leadership The Angeles Clinic has fostered a program that combines expert clinical care with teaching and leading clinical research.

Dr. Hamid is recognized as one of the preeminent Immuno-Oncologists and melanoma specialists in the world.

“My research focus involves manipulation of a patient’s immune system to attack cancer cells and maintain continuously elevated levels of immunity. Researchers have been studying the role the immune system can play in eradicating cancer for decades. Recent advances in immuno-oncologic therapeutics have provided lasting benefits to patients with few treatment options available. These therapies are not only a ‘breakthrough’ in cancer therapy – they have revolutionized the way we treat cancer. In order to optimally treat our patients we need to understand not only the novel mechanism of action of these therapeutics, including the ability of late response post progression – but also their novel toxicities. The future of these therapies are not just in single agents. We have seen the promise of higher and more durable response with combinations of these agents. Our role of researchers and clinicians will be to utilize these concepts along with the understanding of immuno-oncologic targets and the role of clinical trials in supporting this revolution.”

Title and Affiliation:
Omid Hamid, MD
Chief, Translational Research & Immuno-Oncology
Director, Cutaneous Malignancies, The Angeles Clinic and Research Institute Director of Experimental Therapeutics, Cedars Sinai Medical Care Foundation


Tara McCannel MD, Ph.D., the Director of the Ophthalmic Oncology Center at the UCLA Stein Eye Institute of the David Geffen School of Medicine at the University of California, Los Angeles (UCLA), is a leader in the field of ophthalmology and diseases of the retina and vitreous. She has pioneered new surgical treatment strategies in ocular melanoma that are both vision-saving and that provide patients with more knowledge about their cancer. Dr. McCannel belongs to a number of professional organizations, including the American Academy of Ophthalmology, the International Association of Ocular Oncology, the Association for Research and Vision in Ophthalmology, and the American Society of Retina Specialists. She is also a member of both the prestigious Retina and Macula SocietiesDr. Tara McCannel earned her doctor of medicine degree at the University of Toronto’s Faculty of Medicine. She also completed her internship and a four-year residency in ophthalmology at the University of Toronto’s Department of Ophthalmology and Vision Sciences. Dr. McCannel was named Chief Resident in Ophthalmology and matriculated in the University’s Clinician Investigator Program, from which she earned her Doctor of Philosophy in the School of Graduate Studies, in the field of molecular biology. Before being recruited to UCLA, she completed a two-year vitreoretinal surgical fellowship at the Massachusetts Eye and Ear Infirmary, Harvard Medical School.

Throughout her academic career, Dr. Tara McCannel has garnered recognition for her superior scholarship and achievement. Since receiving her doctorate, she has been awarded several research grants. Dr. Tara McCannel sits on the editorial board and serves as a reviewer for more than a dozen medical journals, in addition to her medical and surgical responsibilities to her patients at UCLA.

Additional Practice Locations:
Doheny Eye Center UCLA – Pasadena
625 South Fair Oaks Avenue
Suites 280, 285, 240, 227
Pasadena, CA 91105
Phone: 626-817-4747
Fax: 626-817-4748

Linksuclahealth.org/eye
uclahealth.org/Doheny


Dr. Arnette ParkView Wellness  in the summer of 1988, he moved from his home in Dallas, TX to his new home in Southern California to pursue a career as a natural physician. Desiring to seek more answers in the direction of diagnosis he found his way to the philosophies from the East. In 1991, Dr. Arnette completed his Doctorate in Chiropractic with the Los Angeles College of Chiropractic in Whittier, CA. He joined a Wellness Center in Huntington Beach, CA and began practicing nutrition, chiropractic, mind-body therapy and health counseling.

In 1997, Dr. Arnette received his Master of Science degree in Oriental Medicine from Samra University of Oriental Medicine in Los Angeles, where he is also a former member of the faculty in acupuncture, anatomy and physics. In pursuit of expanding his expertise in acupuncture and Chinese herbal medicine, Dr. Arnette has frequently traveled to China. His studies there were conducted in clinical settings in both hospitals and private medical offices. Coursework included traumatology, orthopedics, internal medicine, gastroenterology, OB/Gyn, pediatrics, neurology and psychology. This occurred many times between 2000 and 2008.

As a personal goal, in 2006, Dr. Arnette became a certified yoga instructor (500-hours). He strongly believes that the practice of yoga is like “active acupuncture.” The individual practice of yoga balances the body’s energy from the inside, out. He currently teaches yoga at Whaley Park Community Center in Long Beach,California. In 2012 he completed his meditation teacher training with Deepak Chopra at the Chopra Center in Carlsbad, CA. Today, Dr. Arnette teaches private introductions to meditation and uses meditation training in his clinical practice.

Today, Dr. Arnette lives with his partner of 17 years and their dog “Majiang.” Theyshare a life based on love, mutual respect and healthy living principles andpractices. “Walking the talk” as the phrase goes, is their driving motto.Additionally, music makes up a great part of their personal life – Dr. Arnette was the choir director of their church for a number of years. Music, Spirit, Love and healing are the messages they offer back to the world.


Castle Biosciences

Castle Biosciences is a molecular diagnostics company committed to serving patients with underserved cancers. The DecisionDx-UM test enables accurate staging of five-year metastatic risk in uveal melanoma. Validated in multiple prospective and retrospective studies, it is standard of care in a majority of ocular oncology practices. Castle Biosciences also offers DecisionDx-PRAME and DecisionDx-UMSeq testing for uveal melanoma. More information can be found at MyUvealMelanoma.com


Jaime Jessen has obtained a bachelor of Science in Biology from York University, and Masters in genetic counseling from Newcastle University, Australia. Jaime has earned certification from both the Canadian Association of Genetic Counsellors and The American Board of Genetic Counseling.  Jaime has 13 years experience as a clinical genetic counselor providing patients and families with the information they require to make informed decisions. Jaime is a resource to both healthcare providers and patients as her role as Medical Science Liaison at Impact Genetics. Jaime’s passion for the provision of support and specialized medical knowledge compliments the high quality genetic testing services offered by Impact Genetics.


Joanna Fawzy Morales, Esq. is a cancer rights attorney, author, speaker, and CEO of Triage Cancer, a national, nonprofit organization providing education on practical and legal issues that may impact individuals coping with cancer and their caregivers, through events, materials, and resources.

Mrs. Morales has spent more than twenty-five years working on behalf of individuals with cancer, including five as an Adjunct Professor of Law at Loyola Law School, teaching a seminar in Cancer Rights Law, and eight at the John Wayne Cancer Institute’s Psychosocial Care Program and Positive Appearance Center.

Mrs. Morales has presented hundreds of educational seminars on employment, insurance, health care, and advocacy issues throughout the country for patients, survivors, caregivers, health care professionals, advocates, lawyers, employers, and the general public.

In addition, Mrs. Morales has served on numerous cancer community committees and boards, including as Chair of the Board of Directors for the California Division of the American Cancer Society, ZERO Prostate Cancer’s Medical Advisory Board, the National Advisory Board of CancerForward, the Stupid Cancer Survivorship Advisory Council, and the Executive Committee of the American Bar Association’s Breast Cancer Task Force.

She co-authored a book on Cancer Rights Law for the American Bar Association. In 2017, she wrote a book chapter, “Preventing or Minimizing Financial Toxicity Across the Continuum of Cancer Care,” for the Oncology Nursing Society’s book, “Cancer Survivorship: Transdisciplinary, Patient-Centered Approaches to the Season of Survival.” In 2009, she also contributed to a book entitled, “Work and Cancer Survivors.” And, she has been published in a variety of other publications, such as Psycho- Oncology, Coping with Cancer, Women, and Ability Magazine.

Mrs. Morales has received numerous awards and recognition for her service to the cancer community and her work in the area of legislative advocacy, such as the 2009 Susan G. Komen for the Cure® Public Policy Advocate of the Year and the 2015 Legacy Advocate Award from Stupid Cancer. In 2010, she was also recognized by the Los Angeles Daily Journal as one of the Top 20 Attorneys in California Under the Age of 40.

Mrs. Morales received a Bachelors of Arts degree in Political Science with an emphasis in International Relations from the University of California Los Angeles and a Juris Doctor from Loyola Law School Los Angeles.


Anne Osborn, Author, as a teen grew up in the shadows of OM when her mother died of OM.  Forty years later, she, was diagnosed with OM, Class 2.

She spent her career in human services, trained as a psychotherapist.  Her specialties include initially being a children’s therapist specializing in needs impacting the ability to learn in education.  Simultaneously she began leading an emergency team for law enforcement and fire personnel over nearly three decades, ‘when bad things happen to them, we go in’.

Managing her stress was with long distance, both in running and bicycling.  Though now, as a Master Gardener time is spent in Nature. Her passion outside of family and friends includes travel, writing and being of service.

Her new book, Coping with Ocular Melanoma: A Toolbox is published.  She will talk about its contents here at the conference.


Jennifer Drew earned her Master’s Degree in Social Work from University of Southern California and is a Licensed Clinical Social Worker with advanced certifications in Oncology and Palliative Care.  She spent her early career at City of Hope in hematology/oncology and BMT transplant.  Jennifer is honored to be the inaugural Clinical Social Worker at The Angeles Clinic and Research Institute.  She sees her role within the outpatient oncology setting as a partnership with the medical team dedicated to enhancing our clients’ coping with the adjustment to diagnosis and treatment.   Jennifer has a history, spanning over a decade, of studying mindfulness and is Qualified by the University of Massachusetts to lead Mindfulness Based Stress Reduction (MBSR) courses.


Mike Lescure is an experienced supporter/caregiver of his wife Suzanne Lescure.  During her 13+ years with conjunctival melanoma, Mike has been her constant support.  Mike has made the journey easier by taking a very business like approach to her care.  Running a successful commercial plumbing business, Mike was able to apply his skills and knowledge of business to provide care, support, research for Suzanne.


Loren Seaman, Recovery Coach and Trainer & Ocular Melanoma Survivor

Loren’s professional career has been mainly in the mental health industry, specializing in working with women with co-occurring disorders (addiction & mental health).  In 2004, Loren was a founding partner at a women’s holistic addiction treatment center that focused on treating women with trauma. This center allowed Loren to fulfill her lifetime dream and passion of helping women and families heal.

Loren’s background in branding, working in public relations, admissions, interventions, and coaching, helped gained national presence for this women’s center.  At the end of 2017, with over 19 years of industry experience, Loren decided to leave the women’s center and started a coaching business: “Inspire Hope and Change”, where she is able to continue to help women and families heal.

Personally, Loren was diagnosed with Malignant Melanoma in her left eye and was treated 11/10/01 with Brachytherapy.  In 2009, she was operated on again on the left eye with a cataract.  In June 2017, Loren suffered an Ischemic Optic Stroke in her right eye, which was her healthy eye, and since this time she has been receiving treatments to that eye.  Since January 2018 Loren has been suffering from severe Macular Edema (bleeding in both eyes).  She is at the oncologist every two weeks for treatments to both eyes and also suffers from Ocular Hypertension. Loren is battling to save her vision.

Loren is a survivor and remains positive and lives “One day at a Time” and continues to spread the message of HOPE!


Suzanne Lescure

Suzanne Lescure is a 13+ year survivor of class 4, or metastatic, conjunctival melanoma.  Suzanne has made her diagnosis an inspiring story for others through her work as a speaker for pharmaceutical companies, nursing and patients.  Suzanne is an effective patient advocate for all types of melanoma.  Suzanne is a moderator of many Facebook groups, heads A Cure In Sight’s Care Companion program, and a member of the Board of Directors for A Cure In Sight.


Melanie Sue Robertson

Melanie is a retired Registered Nurse whose daughter, Kady, was diagnosed with OM in Dec 2016, just days before her 30th birthday. Kady is treated by Dr Amy Schefler in Houston and Drs Orloff and Gonsalves in Philadelphia. She was diagnosed as stage 4 in January 2019. Since Kady’s diagnosis, Melanie has been an advocate for Kady in her treatments and journey with OM. Melanie is A Cure In Sight’s Volunteer Advocate in Texas. She is based in Beaumont, Texas and spends much of her time educating the public about OM and the importance of dilated eye exams in the early detection of OM.  Melanie is the NORD representative for A Cure In Sight representing ocular melanoma at the rare disorder meeting across the United States.


Geoffrey GilbertCertified Massage Therapist

Geoff is a Certified Massage Therapist with specialty in Neuromuscular Therapy. He focuses on pain-management and rehabilitation with his patients using a thorough understanding of the brain-body connection. Utilizing how the nervous system communicates within our fascia, he treats pain and related symptoms surrounding the skull, face, as well as referral pain from the neck successfully. He has been working with this approach for the last 3 years and has accumulated over 1350 accredited hours of education.

Currently, He practices at ParkView Health & Wellness Center in Long Beach, CA where he applies his laser-focused techniques on difficult and unusual cases. Working along-side acupuncture, chiropractic and Functional Medicine he feels his treatments have the best chance for outcome excellence.


BILL WARREN CERTIFIED YOGA INSTRUCTOR

A native of New Zealand, Bill is passionate about teaching yoga because he knows firsthand about connecting to nature’s power from living there. He also believes that this natural power is inside each of us and each has the inner potential for growth and healing. “That’s what yogais: Tapping into the unlimited stream of consciousness for change, healing and unity; physically, mentally and Spiritually.”

As a certified Yoga Instructor, he currently teaches Hatha Yoga in Long Beach, CA where he lives with his partner and Chinese Crested dog – Majiang. He additionally, holds a BS in Political Science from Brigham Young University in Oahu, Hawaii.

Sessions

Thursday September 5th

Key Not SpeakerDug McGuirk

Dug will bring his unique style of motivation and overcoming your fears to help you breakthrough what’s holding you back. To help you look past your diagnosis and be the best you can be.

Spiritual Health and Nutrition  Dr. Arnette

Is there more to nutrition than the molecules in action in your body? What is this action that makes the elements of nutrition work? Does your nutrition affect your Spirit? Does your Spirit affect your Nutrition? This presentation is about connecting the dots between these realms of your personal experience. During this engaging presentation, these and additional topics will be expanded upon for the purpose of building bridges between seemingly opposite realms of thoughts, ideas and understanding. Come listen and explore new bridges within you.

Planning Ahead to Protect Yourself & Your Family   Joanna Fawzy Morales, Esq.

Estate planning can be overwhelming and can often bring up topics that are difficult to discuss. However, being prepared can also bring a sense of comfort. This seminar will cover the various documents that can make up an estate plan, things to consider as you begin the process of creating your plan and options available to individuals to protect their medical decision making rights.

NOTE Dug McGuirk will be available for small group and privet sessions during the afternoon and evening for a fee.  If you would like to schedule an individual session, please contact registration to sign up.

Friday September 7th

Low Vision

Learn tips and tricks to help you deal with your low vision.

Care for the Caregiver   

Caregiving and supporting a patient is often difficult and a difficult job that you did not ask for.

Thrivorship  Anne Osborn

As OMers we are in our own, unique life boat.  Often times we want to upgrade our perspective from year to year just to know we have our skill set up to par.  Come join us for exploring your own perspective and ours. Ocular melanoma is difficult disease to live with day in and day out.  Anne has a whole tool box of things to help you to Survive and Thrive with ocular melanoma.

Caregiver panel  Mike Lescure Moderator

Hear from other caregivers on issues related to care giving.

Impact Of An OM Diagnosis

How does an OM Diagnosis effect you and the people in your circle.  Hear from patients, caregivers and therapists on the unexpected ways that OM has effected them and how to move past it.

Navigating Insurance & Finances   Joanna Fawzy Morales, Esq.

Cancer is expensive. However, there are steps you can take to reduce the financial impact of a cancer diagnosis. Learn how to pick the best health insurance plan to minimize your out-of-pocket expenses, as well as other ways to manage your finances.

Saturday Sept. 7

Dr. Hamid Opening session

Understanding Genetic testing

Dr. Mruthyunjaya leads a panel of experts to discuss the latest in genetic testing and answer your questions.

Talking To Your Kids About Cancer

How and what do you say to your kids when you are diagnosed with OM.  How to answer their questions in an age appropriate way.

Scanning Protocol and Follow Up Care 

What do you need after treatment?  Scans, return eye appointments, why is it necessary and what should you be doing.

Retinopathy and Side Effects of Initial Treatment of the Eye

Dr. Mruthyunjaya and Dr. McCannel discuss retinopathy and other side effects of the treatment of the eye.

Tools and Techniques for Reducing Stress

Anne Osborn gives us her toolbox to help reduce stress while waiting for scans, appointments and daily life struggles.

Updates In Metastatic OM

Dr. Hamid will give an overview of the latest treatments in ocular melanoma.  What might be coming and what is showing promise.

Western Medicine Meets Functional Medicine

Dr. McCannel leads the discussion of how functional medicine can work with traditional medicine.  Dr. Arenette will speak about alternative therapies and when they are complement your traditional treatment.

Side Effects of Metastatic Treatment, Clinical trials

With a metastatic OM diagnosis there can be side effects.  What are they and how do we deal with them.  Dr. Hamid will go over some of the common side effects and discuss why we get them, how to treat them and what it all means.

Survivorship in Ocular Melanoma: Success During and After Cancer

This session provides a brief overview of survivorship during and after treatment.   Diagnosis and treatment can have a significant impact on not only physical health, but also relationship, emotional and spiritual health.  Quality of life, intimacy, employment, and the psychological impact of treatment can require support from outside your immediate family.  This presentation provides a brief overview of strategies and tools to support biopsychosocial spiritual health during and after treatment.

Navigating Clinical Trials

Are you curious about clinical trials but do not know where to start?  Adjuvant or metastatic trials are available what do you need to know.

Acupuncture and Alternative Medicine, What Is It?

Is acupuncture a technique or a Medicine? Is Acupuncture’s philosophy irrelevant in today’s scientific world? As science is offering explanations of how acupuncture works, are these “reduced descriptions” beneficial to you? Do these reduced descriptions help you to benefit from acupuncture more or less? This presentation is designed to help get you up to speed about this progressive and interesting approach to healthcare. Come, listen and share in the discussion as to what we know about what we cannot see!

Advocacy and Events

Wellness Room

Check out our Wellness Room for demonstrations and classes to relax, refresh and recharge. Stay tuned for a list of classes and times.

Breath Work Wellness Sessions

Mary Stockton is a partner at The Clearing Center, Vista CA. She is a Breathing BEYOND Grief™ practitioner, a Grief Recovery Specialist™ and a Certified Transformational Breath® Facilitator and Group Leader. She completed her degree at Sweet Briar College and began her professional career in sales. Amongst sales awards and success, her life felt incomplete and empty. In 2014, after having a new baby, she felt lost and deeply depressed. She found Breathing BEYOND Grief™ and credits the program with healing past hurts, traumas and renewing her JOY for life. She uses this work daily to help her be a calm effective wife and mother as well as help others discover their peace, presence and purpose.
Ernesta Sulcas is  practitioner of transformational wellness modalities with a deep passion for her work and tender compassion for her clients. She helps individuals and groups experience a vibrational shift towards a healthier and more harmonious state of being by applying various innovative methods that promote physical, mental, and emotional wellness as well as spiritual integration.Her mission in teaching these tools is to assist others in healing from the inside out, seeing their innate beauty and value so that they may truly begin to love themselves unconditionally, live joyfully and share their unique gifts and talents with the world.

Vendors

Barbara Van Hare is the Director of Foundation Partnerships at the Rare Cancer Research Foundation (RCRF). In her role, she works with rare cancer foundations and their patient communities to help get critically needed patient samples to high impact research projects.Barbara joined RCRF after a 30-year sales and marketing career with Hallmark Cards, as her father, brother and nephew have all been affected by different rare cancers.Barbara will address the importance of tissue donation and how OM patients can help propel research forward faster.

The Rare Cancer Research Foundation (www.rarecancer.org), founded by an Ocular Melanoma survivor, is dedicated to curing rare cancers through strategic investments and collaborations that catalyze effective research and accelerate deployment of promising therapies.Pattern.org, an initiative of the Rare Cancer Research Foundation, is a patient-research matching program that enables patients to directly donate their tumor tissue and medical data to research.