A Cure in Sight (ACIS) will be joining the EveryLife Foundation in Washington, DC for Rare Disease Week! Together, we’ll meet with Congressional leaders to discuss the urgent need for funding rare disease research and improving access to treatments.
Our mission:
To unite patients, caregivers, researchers, and advocates to create a strong, clear message for our Members of Congress — one that ensures the rare disease community is heard.
What’s happening:
ACIS will hold a meeting to craft our advocacy message
We’ll come together for a community dinner to connect and share
Register to join us in DC or virtually: Registration Form
Let’s raise our voices together for the rare disease community. Your voice matters — see you in DC!

