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Yes. Thank you for considering us for memorial donations! Many families have found it beneficial to use verbiage such as: "In lieu of flowers, memorial donations may be made to the Rare Cancer Research Foundation online at https://rarecancer.org or 703 Foster St., Durham, NC 27701" in the obituary. Donors can indicate their gift is in [...]

It's always your choice to donate tissue samples and/or medical data, and if you decide to do so, there are rules and ethical guidelines in place to protect you. Your sample will be de-identified from you, meaning your name and personal info are removed or coded, so researchers don’t know who the sample(s) came [...]

There is no cost to patients to contribute tissue to research through pattern.org.

Yes, we are now accepting “data” only donations which could include your medical records from one or more of your treating hospitals, genomic sequencing results and other details that doctors and labs collect during your care.

Yes, we are now accepting “stored” tissue for a number of rare cancer indications!  If we aren’t currently accepting donations of your particular cancer, please let us know you’re interested in donating tissue and we’ll work to see if we can find a research project that can utilize your tissue sample(s). [...]

If you decide you want to contribute a tissue sample(s) to a research project, we ask that you complete the informed consent at least a week before your scheduled procedure date if possible, so that we have time to coordinate with your medical provider.

You can email info@pattern.org or contact the number on your informed consent to revoke your consent at any time. If you revoke your consent, your medical care will not change.

Inform pattern.org and your medical provider of your decision immediately.

The donation of your tumor or other tissue will have no impact on your medical care.