rare disease day Archives

Independent Organization for Ocular Melanoma for Patients and Research

2025 Rare Disease Day, Hill Day and MRA Scientific Meeting

2025 Rare Disease Day, Hill Day and MRA Scientific Meeting

MelodyB2025-03-03T17:03:55+00:00March 3rd, 2025|Uncategorized|

A Cure In Sight celebrated rare disease week in Washington DC and Boston MA. We had a great group of ocular melanoma patients and supports join ACIS and Everylife Foundation for a great 2 days at Capital Hill. In person meetings were held with Representatives and Senators from Rhode Island, Virginia, Pennsylvania, North Carolina [...]

Rare Disease Day – Ocular Melanoma Stories

Rare Disease Day – Ocular Melanoma Stories

Megan Bekkedahl2024-02-22T21:46:38+00:00February 22nd, 2024|In the press, Latest Publications, Ocular Melanoma, Uncategorized|

Celebrating Life Beyond Ocular Melanoma: Tricia's 19-Year Journey In the spring of 2005, Tricia's routine eye examination uncovered something life-altering. At 46, a day that began with the simple intent to get reading glasses led to a diagnosis of ocular melanoma. Facing the unknown with her family by her side, Tricia's resilience shone [...]